Georgia lawmakers poised to study HIV decriminalization


(Via Project Q Atlanta)

by Regina Willis

Advocates for decriminalizing HIV in Georgia saw small wins last week as two measures from state lawmakers that would create committees to study the issue moved closer to passage.

Nina Martinez, a member of the Coalition to End HIV Criminalization in Georgia, testified about one of the measures before the House Special Rules Committee on Wednesday.

“Our HIV non-disclosure statute makes it a felony crime for me not to disclose my HIV-positive status before engaging in private consensual conduct, without regard to whether or not measures are taken to prevent HIV exposure and transmission. Without harming anyone or intending to harm anyone, I could face up to 10 years of imprisonment,” Martinez told the committee.

In Georgia, HIV criminalization laws make it a felony for an HIV-positive person to engage in sex without first disclosing their status. The laws also criminalize acts like spitting when the behavior is directed at law enforcement officers with penalties that include up to 20 years in prison.

Rep. Dominic LaRiccia, a Republican from Douglas, challenged Martinez on her statement.

“Would you share briefly a specific instance, personally, of where you have been discriminated against and how it impacted your ability to move freely and do all the things that you do?” LaRiccia asked.

Martinez responded by discussing being the victim of an attack that she decided against reporting to law enforcement over concerns about her HIV status.

“About nine years ago I was sexually assaulted by an Emory undergraduate student. I was at Emory for graduate school, and because of this law I immediately knew that I wasn’t going to report it to law enforcement,” Martinez said.

“It was never going to be about consent, it was going to be about my HIV status. And so I was afraid of the very real possibility of going to prison for my own sexual assault because of this law,” she added.

Martinez also spoke on a panel about HIV decriminalization in November.

Rep. Buddy Harden, the Republican chair of the committee, quickly thanked Martinez for her testimony and the committee voted to approve the resolution. The measure, House Resolution 240, is from Rep. Sharon Cooper, a Marietta Republican.

But the resolution that passed last week was a watered down version of what Cooper initially proposedin February. It called for the creation of a Joint Study Committee on Reforming HIV Related Criminal Laws but was pared back to propose a House-only committee that will investigate reforms needed to address a variety of chronic illnesses, including HIV, as well as asthma, obesity, shingles and influenza.

The new language now calls on the study committee to “assess the HIV laws’ alignment with current evidence regarding HIV transmission risk and consider whether these laws are the best vehicle to achieve their intended purpose,” in addition to addressing the other chronic health issues.

Cooper’s revised resolution also states:

“WHEREAS, identifying the barriers to HIV awareness, testing, and early linkage to care would be in the state’s best interest; Georgia ranks fifth in the nation for new HIV diagnoses; the Atlanta-Sandy Springs-Marietta area is listed as eighth in cities with the highest rate of new HIV infection; it is estimated that one in 51 Georgians are at risk of contracting HIV in their future.”

Lawmakers create study committees to hear expert testimony and collect information about an issue ahead of possible legislative action. It is too late in the session to gain approval for a joint study committee – one that includes House and Senate members – so the measure approved last week was limited to a House study committee. That means it only needs House approval to create the nine-member study committee that would include five lawmakers and four health experts.

With just two days – Tuesday and Thursday – left in the session, it’s not clear if Cooper’s resolution will see a full House vote.

The other promising study committee is from Sen. Vincent Fort (photo), an Atlanta Democrat who introduced Senate Resolution 465. That resolution would create a nine-person panel and includes language from Cooper’s original resolution:

“[M]any of these state laws criminalize behaviors that the CDC regards as posing either no or negligible risk for HIV transmission even in the absence of risk reduction measures.”

Fort’s resolution received a favorable recommendation from a Senate committee but it’s not clear if the Senate Rules Committee will push the resolution to the full Senate for a vote.

LGBT and HIV activists have blasted HIV criminalization laws in nearly three-dozen states as a failure, criticizing the statues for adding stigma to HIV, keeping people from getting tested, and oppressing already marginalized populations such as LGBT people.

In February, state lawmakers joined with LGBT and HIV activists during a public hearing to explore the impact of the HIV epidemic among black Georgians as well as HIV criminalization laws.


Lawmaker wants to reform Georgia’s HIV laws

(via Project Q Atlanta)

By Regina Willis


A Marietta Republican is sponsoring a measure to examine the state’s HIV criminalization laws, which advocates argue are outdated and stigmatize people with HIV.

Rep. Sharon Cooper (photo), who chairs the influential House Health & Human Services Committee, introduced House Resolution 240 on Feb. 14 to create a Joint Study Committee on Reforming HIV Related Criminal Laws.

“It was brought to my attention that a lot of the laws on our books are older, and that a lot of the laws on HIV were done in the eighties and we’ve certainly had a lot of change in science since that time,” Cooper said.

In Georgia, HIV criminalization laws make it a felony for an HIV-positive person to engage in sex without first disclosing their status. The laws also criminalize acts like spitting – when the behavior is directed at law enforcement officers with penalties that include up to 20 years in prison.

The current Georgia law also doesn’t take into account issues like condom usage or advising a partner to take PEP (post-exposure prophylaxis) after sexual intercourse – acts which reduce the likelihood of transmission. LGBT and HIV activists have blasted HIV criminalization laws in nearly three-dozen states as a failure, criticizing the statues for adding stigma to HIV, keeping people from getting tested, and oppressing already marginalized populations such as LGBT people.

“The law in Georgia doesn’t require intent to infect, it doesn’t require likelihood of transmission because it has things like spit, urine, feces in it. It doesn’t require transmission,” Nina Martinez, a member of the Coalition to End HIV Criminalization in Georgia, said during a panel discussion last year.

Lawmakers create study committees to hear expert testimony and collect information about an issue ahead of possible legislative action. Cooper’s resolution would create a 12-member committee – five members each from the House and Senate, along with a representative of the Prosecuting Attorneys’ Council and the state Department of Public Health – that would meet and issue a report of its findings by Dec. 1.

“Sometimes you have to take baby steps,” Cooper said. “Bring in the experts to give you the background and the academic backing to back up which route you decide to go.”

One option the committee could study is completely eliminating HIV criminalization laws, according to Cooper’s legislation:

“The best practice would be for states to reform these laws to eliminate HIV-specific criminal penalties except in two distinct circumstances. First, states may wish to retain criminal liability when a person who knows he or she is HIV positive commits a (non-HIV specific) sex crime when there is a risk of transmission (e.g., rape or other sexual assault). The second circumstance is when the individual knows he or she is HIV positive and the evidence clearly demonstrates that individual’s intent was to transmit the virus and that the behavior engaged in had a significant risk of transmission, whether or not transmission actually occurred.”

Another option the committee could explore is keeping current laws in place but updating them to reflect the actual routes of transmission that are possible, eliminating actions such as  biting and spitting. The Center for Disease Control & Prevention supports reforming HIV criminalization laws.

HR 240 has been assigned to the House Special Rules committee and undergoes the same route to approval as other legislation. If it gets approval from the committee, then it moves to a House vote and then to the Senate for consideration.

The resolution has a handful of influential co-sponsors, including Rep. Wendell Willard, a Republican and chair of the Judiciary Committee, Rep. Carolyn Hugley, a Democrat and Minority Whip, and Rep. Bruce Broadrick, a Republican from Dalton.

Bill would OK expedited partner treatment for STDS

Cooper is also sponsoring another sexual and reproductive health related measure. House Bill 360allows physicians to prescribe medications for certain sexually transmitted diseases – namely chlamydia and gonorrhea – to somebody’s partner without first examining the partner. Expedited partner therapy (EPT) is recommended by the CDC to help control the spread of certain STDs.

“Normally the physicians have to see somebody before they order a medication, and sometimes it’s very hard to get the partner to come in,” Cooper said.

“[EPT] allows one part of the duo to save face, and hopefully take the medicine and then make sure they are both clear so they are not just reinfecting each other,” she added.

Some 38 states currently allow this practice. HB 360 has been assigned to Cooper’s Health & Human Services Committee. Cooper said a version of this bill introduced last year was passed in the House and was held up in the Senate.

Neither the resolution or the bill has been scheduled for a hearing.

Activists: Change Georgia laws that unfairly punish HIV-positive people

(via Creative Loafing Atlanta)

by Sean Keenan


Georgians living with HIV can be locked away for up to a decade for neglecting to inform sexual partners of their status, even if they’ve been told by a doctor that their viral loads are too low to transmit the virus.

Under Georgia law, HIV-positive people are required to tell partners of their status prior to sex. If they don’t, they could be charged and convicted for “reckless conduct” — a felony — even if they don’t transmit the virus. People who divulge such personal info to others can face harsh discrimination, and even violence, for saying they have HIV. In other cases, their privacy could be compromised.

According to the Center for HIV and Law Policy, more than 30 states have laws about prior notification and spitting or biting, even though medical experts say such behavior does little, if anything, to contribute to the transmission of HIV. And Georgia activists who are trying to end HIV stigma want state lawmakers to revisit laws here. 

The topic was raised on Nov. 30, the evening before World AIDS Day, at an event organized by advocacy group Georgia Equality. During a panel discussion at the event, four HIV-positive people talked about the stigma that comes with living with the condition. 

Nina Martinez, a public health analyst and Georgia Equality activist, said she hasn’t had a relationship in 11 years. That’s because Martinez is worried she could be beaten or criminally charged for merely engaging in romantic endeavors with someone who is not aware of her condition. Martinez told the few dozen people in attendance that, after being sexually assaulted, she kept quiet in fear of “going to prison for my own rape.”

Panel speakers said they’re working with local politicians to create legislation that could reduce the stigma surrounding HIV. Many people don’t know that HIV-positive people taking proper medication can have normal sex lives with virtually no risk of passing the virus to others, said panel moderator Dazon Dixon Diallo, founder and president of SisterLove, an advocacy group focused on African-American women with HIV/AIDS.

Dixon Diallo said appropriate use of pre-exposure prophylaxis, or PrEP, and antiretroviral therapy can now virtually quash the chances of transmission during intercourse or other exchanges of bodily fluids, citing a two-year study of more than 1,000 couples that knew of their partner’s status.

“Treatment is prevention,” said Dr. Richard Rothenberg, associate dean of faculty development and research at Georgia State University’s school of public health. “Getting people on adequate treatment (defined as no detectable viral load) clearly diminishes transmission considerably.”

Georgia has one of the highest diagnosis rates of HIV in the nation. According to a recent study by the Big Cities Health Coalition, metro Atlanta had the country’s second-highest rate of HIV diagnoses, second to Washington, D.C. Nearly half of metro Atlanta cases are in Fulton County.

“So how well has our criminalization law done to drive down [HIV] cases?,” asked Mel Medalle, a SisterLove policy and advocacy advisor. “I don’t think very well.” 

To people who aren’t knowledgeable of advancements in HIV treatment and prevention, Dixon Diallo said, “it might seem like these laws are helping people … But there is no sense of agency or responsibility to someone who is not HIV positive.” For example, Martinez said she could be taken to court for not informing a partner of her status prior to having sex, even if she contracts an STD her partner might be carrying in the process. “Complying with the law assumes that disclosure is safe,” she said. “But there’s nothing to stop that guy on a Friday night from giving me syphilis.”

One audience member asked whether a pre-sex, contractual understanding could thwart cases in which people raise issues with the terms of their sexual exploits after the fact. Medalle said having such a document in theory but “in the real world, the stigma would outweigh that every single time.”

Charles Stephens, director of The Counter Narrative Project, an advocacy group supporting gay black men, said HIV criminalization is also used as a means of endorsing homophobic and xenophobic policy. Stephens has followed the case of Michael Johnson, a gay black college wrestler who last summer was jailed after being convicted of transmitting HIV to one man and risking the infection of four others. Johnson was sentenced by a Missouri court to more than 30 years in prison. A Missouri appeals court yesterday ordered he receive a new trial.

“A lot of national organizations are only interested in people with perfect narratives,” Stephens said. “No one was talking about this…If Michael had blonde hair and blue eyes, the cavalry would have come a lot sooner.”

Marxavian Jones, an activist with NAESM, a group that provides education and services for people affected by HIV/AIDS, reminded the crowd that the virus does not discriminate.

“When talking about HIV, it’s not just numbers, these are lives,” Jones said. “People who are married catch HIV. People who have one partner catch HIV. People who have sex for the first time catch HIV. Everyone’s story is different, and it’s unfair to put rules and labels on how people have to share their private and personal information.”

The panelists said they’re working to draft a legislative proposal — they said it’s too early to share specifics — for the upcoming General Assembly to address Georgia’s laws and “decriminalize HIV,” once and for all. 

“The H in HIV stands for humans, and we seem to be missing that humanistic approach,” Jones said. “I am not a walking infection. I am a human. Don’t lock me up for who I am.” 

Laws criminalizing HIV are putting vulnerable women at greater risk

(via NOW)

by Kevin Ritchie

Michelle Whonnock was not in a good situation when she entered into a relationship with a former john in 2006. She was a sex worker on Vancouver’s Downtown Eastside and battling drug addiction. The businessman asked Whonnock to be tested for HIV, but she falsely told him the test had come back negative.

“He was really aggressive and abusive,” she tells NOW. “I was scared of what would happen [if I told him the truth].”

She was in a recovery home in Abbotsford when police showed up to arrest her for aggravated sexual assault. She wound up with a three-year sentence but was given a statutory release after two and a half years. She is now a registered sex offender.

Whonnock’s story is a familiar one to legal experts and women’s advocates who say Canadian laws criminalizing HIV non-disclosure are putting vulnerable women at risk of further harm.

As a child, Whonnock says, she was sexually abused by family members and paid to have sex, experiences that led her down a troubled path. When as an adult she attempted to report sexual assault incidents stemming from her sex work, police did not take her seriously.

“It was just, like, a joke because of what I was doing for a living,” she says.

Today, Whonnock is doing much better. She avoids the Downtown Eastside, lives with a new partner, has a relationship with her five-year-old son and attends drug treatment and counselling as per her release conditions.

“I get up every day and go to work. I feel like I’m leading a normal life again,” she says. “Drugs, alcohol and what I had to do to get by – it was just horrible.”

In Canada, there is no provision in the Criminal Code related to disclosure of HIV status. However, courts have ruled that failure to disclose HIV-positive status before sex can amount to fraud, thereby invalidating consent to sex. Hence the charge of aggravated sexual assault in HIV non-disclosure cases, even if there is no evidence of transmission or serious risk of transmission.

A survivor’s history of sexual violence does not factor into a trial. That information is relevant only at the sentencing phase. Critics say that by treating HIV non-disclosure in this way the courts are failing to consider that women and men aren’t always on an equal playing field in relationships.

Moreover, treating HIV-positive women as sex offenders is subverting sexual assault laws designed to protect sexual autonomy and gender equality. Front-line workers and lawyers say they’re hearing from HIV-positive women who are afraid to report rape and domestic abuse for fear of being charged with aggravated sexual assault themselves.

“People come to me all the time who don’t know what to do,” says Cynthia Fromstein, a Toronto-based criminal lawyer who’s worked on 25 to 30 non-disclosure cases. “Canada, unfortunately, is virulent in its zeal to prosecute aggravated sexual assault related to HIV non-disclosure.”

Fromstein points to the 2012 Supreme Court ruling in R. v. D.C., one of two landmark cases that determined that some people don’t need to disclose their status if they use a condom and have low or undetectable levels of HIV.

The case concerned a Quebec woman (referred to only as D.C. due to a publication ban) who had sex with her partner once before disclosing. The relationship continued for four years and became abusive and violent. After the man was convicted of beating D.C. and her son, he accused her of not disclosing her status the first time they had sex.

The trial judge decided D.C. was lying when she said a condom was used. Although the judge felt her partner was motivated by revenge, D.C. was convicted of aggravated sexual assault.

The Supreme Court later threw the conviction out on appeal, but “solely on a technical legal ground,” related to the trial judge’s handling of the condom evidence.

Fromstein believes that decision puts HIV-positive women in a grey area. “It makes it incredibly evident that [positive status] is a weapon that can be used,” she says.

The handful of front-line workers and legal experts interviewed for this story echo her concerns. They say they’ve received calls from HIV-positive women who’ve been raped but are afraid to report for fear of being charged.

When it comes to prosecuting sexual assault, women’s advocates also point to a double standard.

Says Lenore Lukasik-Foss, director of the Sexual Assault Centre for Hamilton and Area(SACHA), “We’ve heard cases where police are approaching people and saying, ‘Did you know that person is HIV-positive?’ and encouraging them to lay charges. That is not happening in quote-unquote traditional sexual assault.”

Organizations like SACHA are not funded to provide services to registered sex offenders, but are getting creative about finding ways to help HIV-positive women avoid getting charged if a relationship goes sour. One method is for a woman in a new relationship to ask a social worker to witness the signing of a document, kind of like a pre-nuptial agreement, stating that her partner knows her status.

Others will bring a partner to a medical appointment or counselling session so there is a record of disclosure. Women are also advised to ask their partners to get tested together prior to having sex for the first time.

While evidence remains anecdotal that HIV criminalization is discouraging the reporting of sexual assault, two research studies are investigating impacts on women: the Canadian HIV Women’s Sexual And Reproductive Health Cohort Study (CHIWOS) and the smaller Women And The Criminalization Of HIV (WATCH).

According to CHIWOS, women represent nearly one-quarter of the 71,300 people living with HIV in Canada. Of the 1,213 HIV-positive women who participated in CHIWOS, 49 per cent reported being sexually inactive. The kicker: more than 16 per cent of participants reported acquiring HIV through coercive sex. According to the World Health Organization, women with histories of physical or sexual abuse are 1.5 times more likely to have a sexually transmitted infection and, in some regions, HIV.

Marjorie Schenkels, an Indigenous woman from Manitoba who is appealing her 2014 conviction for aggravated sexual assault would fall into that category. (This week a Court of Appeal panel reserved judgment in her case.)

In 2014, she was convicted for failing to disclose her status to a friend she had unprotected sex with three times after they had both been drinking. The complainant later tested positive for HIV.

She received a sentence of two years less a day (plus probation). Unlike Whonnock, Schenkels did not actively lie, but remained silent regarding her status.

In the sentencing decision, the judge noted that “her silence was the result of fear and inability to accept the gravity of her situation.” The judge also wrote that Schenkels was “a product of sexual assault,” recounted her traumatic upbringing, history of intergenerational sexual violence and Schenkels’s belief that she contracted HIV after coercive sex.

Friends and family noted that Schenkels had turned her life around. A report before the court had assessed her as a medium risk to reoffend.

Given these mitigating factors, Schenkels’s supporters were stunned at the length of her sentence.

“Her story is similar to so many women’s,” says Laverne Gervais, project coordinator for Sisters of the Fire, a Winnipeg-based support organization for Aboriginal women living with HIV.

“How she contracted the illness has never been addressed. And so there she was, standing in a courtroom facing charges that in her own [assault] had never come to court.”

HIV is not a crime


by DeClan Keogh

A little over two years ago I found out someone I had unprotected oral sex with was HIV-positive.

I barely knew this person, having met him that same night. We hooked up at a show during Calgary’s Sled Island Festival, behind a life-sized diorama depicting an idyllic beach complete with palm trees, surfboards and sand. What happened was a fun, drunken sexual encounter between two consenting adults.

I didn’t think to ask him about any sexually transmitted infections (STIs) he might have, nor did he offer any such information. Mine is a narrative commonly played out by young people in their early 20s, often fuelled by drugs or alcohol. According to the Canadian Foundation for AIDS Research (CANFAR), young adults aged 20 to 29 account for a quarter of all Canadians diagnosed with HIV or AIDS. Since 2000, the proportion of AIDS cases among youth has grown significantly, increasing from 26.3 to 43 per cent.

After finding out his status from a mutual friend, I was scared and angry. Admittedly my knowledge of the realities of HIV was average at best. I reached out to ask why he hadn’t told me.

The answers I got back were ones I had never heard before. He told me he had “a low viral load,” which by conventional scientific standards means the risk of transmission was low to negligible.

Someone can have a low viral load by sticking to a regimen of antiretroviral drugs. A growing body of research suggests that if someone’s viral load stays low for a period of six months, the virus can become undetectable, which means they can’t transmit HIV.

While the risk of developing disease are higher if you have HIV, new and better drugs have made the odds of developing full-blown AIDS much lower than they were in the 80s, when an AIDS diagnosis was considered a death sentence.

But two decades of HIV-related indoctrination kept nagging at me.

A consensus report released in 2014 by the Canadian Journal of Infectious Diseases and Medical Microbiology says the probability of transmission, regardless of the type of sexual activity or viral load, is low and becomes negligible when a condom is used.

But according to current trends in Canadian law, what happened between us could be considered rape.

A realistic possibility of gross disproportionality

In the eyes of the court, the person I was involved with should bear the full weight under the Canadian judicial system for failing to disclose his status to me.

Failure to disclose one’s HIV status is prosecuted as aggravated sexual assault, commonly known as rape. According to the Criminal Code, this law applies to someone who “wounds, maims, disfigures or endangers the life of the complainant.” A conviction carries with it a sentence of anywhere from five years to life imprisonment, along with a lifelong branding on the Sex Offender Registry.

Canada is currently one of the top 10 countries when it comes to criminalizing and incarcerating people living with HIV. While the numbers are not exact, activists and lawyers who work on cases involving people living with HIV estimate that some 180 prosecutions have been pursued in Canada since 1989.

Cécile Kazatchkine, a lawyer with the Canadian HIV/AIDS Legal Network, tells me it’s unknown how many of those charged have been convicted. (Researchers are currently putting together those statistics.)

But in November, the United Nations Committee on the Elimination of Discrimination Against Women called on Canada to end its broad criminalization of people living with HIV. The committee recommended that the law in Canada be applied only to those who intentionally transmit HIV. In particular, it asked for a review of the application of serious charges such as aggravated sexual assault to women who do not disclose their HIV status to their partners when there is little risk for transmission or when transmission did not occur or was unintentional. This is what some HIV/AIDS activists have been saying for years.

The 2014 consensus report outlining the probabilities of transmission was put together to help our courts interpret current scientific data.

But the current norms regarding the courts’ handling of HIV cases suggest that enforcement in Canada is influenced by stigma, fear, homophobia and even racism. A recent study by York University academics of media coverage of criminal cases involving non-disclosure between 1989 and 2015 reveals that 69 per cent focused on Black and/or immigrant men, even though they make up 20 per cent of the people charged.

A long list of proceedings and precedents govern how the Supreme Court of Canada decides what it thinks we should feel when someone fails to disclose their status.

Most recently, a 2012 ruling (R. v. Mabior) states that a “realistic possibility” of transmission triggers the obligation to disclose. In this case, the court suggested both that a condom must be used and a low viral load be maintained in order to negate a criminal conviction. Even though HIV was never transmitted, the case hinged on the failure to disclose.

Let the punishment fit the crime

Alexander McClelland is an activist and sociology and criminology researcher at Concordia University. His current work focuses on the first-hand experiences of people with HIV charged in Canada. He’s been following 14 cases, 12 of which involve multiple charges, including aggravated sexual assault. His work brings him face to face with our country’s idea of who is a sexual offender.

What McClelland’s research gives us is a perspective wholly absent in the broader discussion of HIV – that of those on the receiving end of our policies. He says everyone he has interviewed has attempted suicide at least once since being charged.

“The stories I’ve heard are really terrible.”

Two of the women he spoke to for his research, he says, were raped, and while reporting this to the police they were subsequently charged with failing to disclose their HIV status to their rapist.

The violence that can result from criminalization of non-disclosure is exponential, McClelland tells me.

“Dirty charges” like rape often result in severe beatings in prison that only intensify when someone has HIV. One man interviewed for his research was beaten so frequently in the general population that he was put into protective custody, housed with child murderers, pedophiles and people who committed violent rape. The beatings continued because prisoners in his new pod saw him as “more heinous than a child murderer” because he had HIV and was charged with rape.

McClelland told me that this man had broken up with his boyfriend, who then went to the police to complain about his failure to disclose. But the ex had allegedly known about his former partner’s HIV status throughout their relationship.

While these examples are extreme, Kazatchkine says her best guess is that at least half the prosecutions in cases of HIV non-disclosure have involved no transmission of the virus.

A research paper released in 2012 by the Canadian Journal of Law and Society – Who? What? Where? When? And With What Consequences? An Analysis Of Criminal Cases Of HIV Non-disclosure In Canada – revealed that 40 per cent of convictions in more than 100 cases involved no transmission.

McClelland says some women living with HIV have started cataloguing and freezing used condoms in an effort to protect themselves from the possibility of prosecution.

Stigma may kill more people than HIV

Michael Schneider is the Positive Youth Outreach (PYO) coordinator at the AIDS Committee of Toronto (ACT). He argues that the issue of disclosure is not as cut and dried as the courts make it out to be. Things like a person’s immigration status and language, as well as fear of rejection, prosecution, violence and abandonment all play into decision-making about whether or when to disclose your status.

“It’s not a gingerbread cutout for everyone,” says Schneider.

These fears are real for many people living with HIV. Immigrants have been deported after court proceedings regarding HIV disclosure. Women and men can face many different forms of violence after disclosing their status. In 2007, Stuart Mark’s boyfriend beat him to death with a golf club after Mark disclosed that he had HIV.

A growing body of empirical research suggests that criminalizing HIV negates the effectiveness of safe sex campaigns. Where once there was an emphasis on dialogue and transparency, now there is fear and punishment. Activists argue that the fact that people can be charged for non-disclosure provides a false sense of security and removes accountability from consensual sex.

After my experience with non-disclosure, I felt some resentment. But while researching this article, I reached out to the person who didn’t disclose to me. We talked about the assumptions we’d both made about each other. It felt good to talk and air our grievances.

I realized I’d learned something I’d never heard from doctors during any of my dozens of trips to the STI clinic, something I’d never heard from my family, my school, in the media or from the government – that you don’t need to be afraid of people living with HIV.

Read more from this week’s Being HIV+ package here.


5 key findings from the latest studies on HIV

– Antiretroviral therapy (ART) can reduce the viral load in the blood and other bodily fluids of people with HIV to undetectable levels.

– A research study known as HPTN 052 found that the risk of HIV transmission through condomless sex between heterosexual couples was “extremely low” when the HIV-positive partner was on treatment.

– A three-year European study of more than 44,000 condomless sex acts between gay and heterosexual couples reported no transmission of HIV when one of the partners was HIV-positive and undergoing ART.

– The average risk of HIV infection can be relatively low in some cases regardless of viral load. The average per-act transmission risk for receptive anal sex without condoms, for example, has been estimated at 1.4 per cent when the viral load is detectable.

– Undetectable viral load doesn’t necessarily mean that there is no virus but that the amount of HIV is below the level tests can detect. Tests in Canada cannot detect HIV in cases where there are fewer than 40 copies of HIV per ml of blood.


Read more from this week’s Being HIV+ package here.

What it’s like to be HIV-positive

(via NOW)

by DeClan Keogh

Photos by Tanja-Tiziana



Doctoral student at the Centre for Interdisciplinary Studies in Society and Culture, Concordia University; steering committee, AIDS ACTION NOW! 

I’ve had HIV for quite a long time now, almost 20 years. At this point I’ve had HIV longer than I haven’t had it. I first tested positive when I was a teenager. My doctor told me I wouldn’t live to be 30.

It was right after the main advances in protease inhibitors. There was a big change in antiretroviral treatment that meant people could live their entire lives. But because it was pretty new, they hadn’t tested the long-term effects and assumed people would only live a certain length of time. Now we know that if you suppress the virus in your immune system long enough, you can live the full, natural course of your life.

Even though it doesn’t have to now, being diagnosed confronted me with my own mortality at a really young age. It gave me drive. It also gave me a sense of how your HIV status can be used to justify incarceration. In Canada, you have people who are arrested and incarcerated because they have a medically controllable, chronic illness – and they’re treated like violent predators.

 I rely on pills every day, but it is a manageable condition. The things that are life-threatening now have nothing to do with HIV and everything to do with people’s misperceptions.

Some AIDS organizations and public health institutions are terrified of the idea that it’s okay for someone with HIV to have unprotected sex if their disease is undetectable. It’s sad, because you realize these organizations are the ones driving the stigma. The consequences of what people thought about HIV/AIDS are still impacting people’s lives.

I don’t have a lot of time for people’s ignorance. I don’t put up with the idea that people are intentionally trying to infect others. People want to take care of their own health, and taking care of your own health when you have HIV means taking medication. I’ve actively made myself un-infectious.

People who are HIV-positive are actively engaged in their health. People who are transmitting HIV are people who don’t know their status.

Recently some friends approached me about being a sperm donor. I guess growing up I never thought that was an option because people think when you have HIV you can’t have kids, which is totally untrue. It’s pretty exciting. My parents are now going to have a kid in their lives who’s connected to me.



community health coordinator

Before I immigrated to Canada in 2006, I was an accountant, the national finance secretary for an organization called Zimbabwe National Network of People Living with HIV. Canada [gave me] an opportunity to build my career and go back to school.

I’ve always been a resilient person. My mom had mental health issues – she was diagnosed with schizophrenia and bipolar disorder later in life – and I had to look after her when I was still in secondary school.

So when HIV came along in 1995, it was not my priority. I had other issues to deal with. When I think about it, I never got depressed. I developed this personality where I choose what I want to concentrate on.

Of course, it was a way of coping. I didn’t want to dwell on it. My friends and other members of the community around that time were dying. At first I just thought, “I’m going to die, I’m going to die,” but as each year passed I realized, “You know what? HIV does not define me.” I can still be like anyone else. When I started treatment, my health also improved.

I marked my 10th year in Canada in August, but it’s been challenging.

I thought it was just going to be smooth sailing. I was expecting Canada to be far ahead in terms of discrimination and access to treatment, but it’s not like that. Actually, I’ve seen people who I came with in 2006 completely shut down. They were activists back home but are not any more due to the stigma and discrimination associated with HIV.

Living in a small immigrant community when you are HIV-positive, it’s almost like you are embarrassing the whole community. HIV ceases to be about you; it becomes a community problem. When you go to churches or where we live, people don’t want to talk about HIV. You are seen as a sinner. People look at you differently.

I’ve seen discrimination in the health care system, too. You hear comments like “What are you doing in this country? You’re the ones who bring HIV.” I’ve heard it from hospitals, from nurses. Awareness is lacking.

We see so many adverts for cancer awareness on TV – celebrities fundraising, people talking about it. You rarely see people talking about their HIV. It’s still dealt with in silence.

When you have that blanket of self-stigma, you don’t see anything positive – even when people mean well. There are times when you walk around thinking that everyone who sees you knows you’re HIV-positive.

I’m an activist and an advocate; I’m a woman living with HIV; I’m a wife; I’m a student; I’m a service provider; I’m also a voice of the voiceless; I’m an immigrant. I wear different hats at different times, depending on what I’m doing. But I’m also Marvelous – I’m just me.



treatment access coordinator with PASAN, Prisoners with HIV/AIDS Support Action Network

I came to Toronto when I was 16 and lived on the streets off and on. I started using hardcore drugs after I lost my girls to Children’s Aid in 2003. I gave one up for adoption and the other one to my mom.

I contracted HIV through injection drug use. I was diagnosed in 2005, along with hep C. I had my first HIV-positive pregnancy in 2007; that’s when I started medication. She came out negative and lives with her grandparents down South. After that I just went back to using and prostitution, because I really didn’t care about my health or anything that was going on.

In 2009 I got really ill. I was in the hospital for three and a half months. All my organs were shutting down. It’s scary when I think about it. People were preparing for my funeral.

The doctors thought I was on opiates and heroin, but I was actually clean off heroin for almost a year. I didn’t want anything for pain management, but they were giving me Dilaudid intravenously.

I didn’t want to go back to my lifestyle. I was tired. I was like, “I just want to do something better for myself.”

But I didn’t have any kind of motivation, so I slowly went back to using. It was tiring just to survive. It’s like drinking all day, prostituting at night and doing drugs just to stay awake to do it all over again.

And then I got pregnant with my son and I quit cold turkey.

People would ask, “How could you do that to a child?” Or “Is the baby going to have HIV?” It just shows you how much people aren’t educated these days. I went back to hiding my status because I just didn’t want to deal with the stigma.

Before, I was doing all these poster campaigns, so people would recognize me. That was kind of hard. Ever since, I’ve always been wary of what I do publicly, because of my son. I’ve often wondered, if things got out, how [my son] would deal with it.

But in the last year I’ve come to think, “You know what? Fuck it.” He likes the Red Ribbon, so if we’re walking around in the village he’ll be like, “Look, Mommy, it’s the Red Ribbon!” But he doesn’t really know what it is yet. He’s been surrounded by the HIV community. I’m trying to raise him to hopefully be a good advocate.

I started out in 2005 as a peer, going to people and telling my story. That really helped me heal. Of course, I’d go and get high right after because it brought up a whole lot of shit. But I eventually got stronger.

I want to break the cycle for my son. But it’s kind of hard, because we’ve isolated ourselves a lot. I just don’t want to deal with people’s thoughts or opinions about how I do things or why I’ve done things or because I’m HIV-positive and parenting. I just don’t want to hear it any more. Which is sad for [my son], because we don’t go to community events and stuff like that. We don’t get the cultural teachings or [First Nations] ceremonies.

I just kind of block it out now. It’s their issue, not mine. At the end of the day, HIV is only part of me; it doesn’t define who I am.

These interviews have been edited and condensed.